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Science & tech
Science & tech
MendelScan—AI for good: informing patient and public perception
By editor
7 October 2024
Medical
Systemic mastocytosis: A new study reveals the perceptions and realities of this rare mast cell disorder
By CONTRIBUTOR
2 October 2024
Industry Insights
Putting patients first?
By CONTRIBUTOR
2 October 2024
RARE News
CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign
By admin
1 October 2024
RARE News
Sickle Cell Disease Association of America Inc. holds convention in Atlanta
By admin
1 October 2024
Patient voice
My unending search for a diagnosis?
By CONTRIBUTOR
25 September 2024
Science & tech
Improved patient finding strategies for rare diseases – a win-win for patients and drug developers
By CONTRIBUTOR
25 September 2024
RARE News
PSPA invites applications for small research projects looking into PSP & CBD
By admin
24 September 2024
RARE News
13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts
By admin
24 September 2024
RARE News
International Gaucher Alliance celebrates 30 years of international patient advocacy
By Becky Pender
23 September 2024
Charity & advocacy
Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits
By CONTRIBUTOR
18 September 2024
A day in the life
Drunk or disabled? – challenges with ataxia
By CONTRIBUTOR
16 September 2024
Sunday sessions
How reiki, spirituality and faith help me accept life with a rare disease
By CONTRIBUTOR
15 September 2024
Letters
The math is anything but encouraging
By CONTRIBUTOR
12 September 2024
Charity & advocacy
Alex TLC Monthly Research Summaries
By CONTRIBUTOR
12 September 2024
Medical
Goal Attainment Scaling: delivering patient-centred clinical trials using personalised outcome measures
By Geoff Case
11 September 2024
Industry Insights
NICE’s key developments in 2024 in summary
By CONTRIBUTOR
11 September 2024
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