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Medical
Medical
Alan Finglas, founder of MSD Action Foundation and Saving Dylan, contemplates EU policy and the potential it has to open the gates for real change in the rare disease community
By CONTRIBUTOR
28 July 2020
Rare insights
Team reflections on working through a global pandemic
By admin
20 July 2020
Medical
Why the COVID-19 pandemic may be particularly challenging for families living with rare conditions
By CONTRIBUTOR
17 July 2020
Patient voice
Achalasia Action is shining a spotlight on a rare disease of the oesophagus: achalasia
By CONTRIBUTOR
15 July 2020
Medical
My reflections on COVID-19
By CONTRIBUTOR
10 July 2020
Charity & advocacy
“I Stay Home for RARE” financial assistance campaign launched by Living in the Light.
By CONTRIBUTOR
8 July 2020
Charity & advocacy
Kawasaki disease UK
By CONTRIBUTOR
1 July 2020
Charity & advocacy
Global Commission progresses technology health pilots to accelerate time to diagnosis for children with a rare disease
By CONTRIBUTOR
29 June 2020
Patient voice
National CMV Foundation – Amanda’s story
By CONTRIBUTOR
24 June 2020
RARE News
RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the youth rare disease community
By admin
24 June 2020
RARE News
Launching RARE Youth Revolution platform
By admin
18 June 2020
Charity & advocacy
Nystagmus awareness day – 20 June 2020
By CONTRIBUTOR
17 June 2020
RARE News
A global gateway to a lasting legacy
By admin
17 June 2020
Medical
Danny’s Dose changing rules and saving lives
By CONTRIBUTOR
12 June 2020
Charity & advocacy
Welcome new boost for mums and dads of young children with albinism
By CONTRIBUTOR
11 June 2020
Charity & advocacy
Local charity thanks the north-east for the gift of time
By CONTRIBUTOR
5 June 2020
Charity & advocacy
My Little Lockdown Life created by Kate Read & Rebecca Atkinson
By CONTRIBUTOR
12 May 2020
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