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admin
RARE News
CMT Research Foundation surpasses $10 Million goal of ENDGAME Capital Campaign
By admin
1 October 2024
RARE News
Sickle Cell Disease Association of America Inc. holds convention in Atlanta
By admin
1 October 2024
RARE News
PSPA invites applications for small research projects looking into PSP & CBD
By admin
24 September 2024
RARE News
13th Annual Getzlaf Golf Shootout raises nearly $500,000 for CureDuchenne, welcoming Troy and Danielle Terry as new hosts
By admin
24 September 2024
RARE News
UK LSD Collaborative set to release new short—‘Hadid and I’
By admin
2 September 2024
RARE News
Make your voice heard: Participate in the Rare Barometer Survey on the impact of living with a rare diseases on everyday life
By admin
2 September 2024
RARE News
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
2 September 2024
RARE News
Exercise is medicine for people living with PSP & CBD
By admin
28 August 2024
RARE News
CureDuchenne expands global initiatives andspreads awareness for World Duchenne Day 2024
By admin
23 August 2024
RARE News
Ladies Luncheon Newport Beach to debut at Shady Canyon Golf Club on October 15 benefiting CureDuchenne
By admin
20 August 2024
RARE News
Introducing the Vascular Voice Network
By admin
12 August 2024
RARE News
PSP Association increases support to families
By admin
12 August 2024
RARE News
Nod to Naz art exhibit opens in California
By admin
9 August 2024
RARE News
Timothy Syndrome Alliance (TSA) looks to recruit Trustee
By admin
2 August 2024
RARE News
CMT Research Foundation invests in project at nationwide children’s hospital to develop improved gene therapy delivery systems for several types of CMT
By admin
1 August 2024
RARE News
Our Voice, Our Rights, Our Future: The ALLIANCE report and video explores key themes and feedback from its 2024 annual conference
By admin
31 July 2024
RARE News
Innov4-ePiK: Innovative diagnostic and therapeutic approaches in potassium channel developmental and epileptic encephalopathies (K-DEEs) using 4P for medicine
By admin
29 July 2024
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