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Press releases
Press releases
Sickle Cell Disease Association of America holds national convention
By admin
27 September 2023
Press releases
Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK
By admin
26 September 2023
Press releases
Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge
By admin
22 September 2023
Press releases
CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers
By admin
21 September 2023
Press releases
EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases
By admin
18 September 2023
Press releases
Uncommon knowledge
By admin
13 September 2023
Press releases
W. David Arnold, MD joins CMT Research Foundation Advisory Board
By admin
7 September 2023
Press releases
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
5 September 2023
Press releases
Dyne Therapeutics and CureDuchenne partner to give the gift of mobility to two local families
By admin
30 August 2023
Press releases
Million Dollar Bike Ride pilot grant program request for applications
By Rebecca Pender
24 August 2023
Press releases
NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne
By admin
16 August 2023
Press releases
IGA issues position statement on non-comparable medicines
By admin
15 August 2023
Press releases
Double dose of suffering: how the war in Ukraine has affected patients with rare diseases
By admin
14 August 2023
Press releases
Landmarks illuminate pink and purple for National Eosinophilic Week
By admin
4 August 2023
Press releases
Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit
By admin
19 July 2023
Press releases
RARE Health Equity Forum seeks to put ideas into action
By admin
12 July 2023
Press releases
Rare disease patient advocates gather in San Diego for a week of events to connect, learn, and empower
By admin
7 July 2023
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