Press releases

Press releases

Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women

By admin

28 March 2023

Press releases

Sickle Cell Disease Association of America to promote clinical trials

By admin

16 March 2023

Press releases

RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’

By admin

28 February 2023

Press releases

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

By admin

22 February 2023

Press releases

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

By admin

17 February 2023

Press releases

Three small research grants awarded

By admin

17 February 2023

Press releases

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

By admin

16 February 2023

Press releases

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

Press releases

Shining the light on tube feeding

By admin

5 February 2023

Press releases

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

Press releases

Raising awareness and celebrating people with craniofacial differences

By Rebecca Pender

24 January 2023

Editor's picks

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

By Rebecca Pender

23 January 2023

Press releases

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By Joe Rumney

20 January 2023

Press releases

Know your sickle cell trait status, according to new campaign

By Joe Rumney

20 January 2023

Press releases

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By Joe Rumney

19 January 2023

Press releases

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

By Rebecca Pender

18 January 2023

Press releases

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

By Rebecca Pender

6 January 2023

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