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RDD Spotlight edition - Hereditary angioedema
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RDD Spotlight edition - Hereditary angioedema
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Press releases
Press releases
Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women
By admin
28 March 2023
Press releases
Sickle Cell Disease Association of America to promote clinical trials
By admin
16 March 2023
Press releases
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
By admin
28 February 2023
Press releases
Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families
By admin
22 February 2023
Press releases
Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!
By admin
17 February 2023
Press releases
Three small research grants awarded
By admin
17 February 2023
Press releases
CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations
By admin
16 February 2023
Press releases
Sure announced as headline sponsor for Parallel Windsor 2023
By admin
13 February 2023
Press releases
Shining the light on tube feeding
By admin
5 February 2023
Press releases
From SMA Europe: We are excited to announce that our OdySMA project is going live!
By admin
1 February 2023
Press releases
Raising awareness and celebrating people with craniofacial differences
By Rebecca Pender
24 January 2023
Editor's picks
RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience
By Rebecca Pender
23 January 2023
Press releases
Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes
By Joe Rumney
20 January 2023
Press releases
Know your sickle cell trait status, according to new campaign
By Joe Rumney
20 January 2023
Press releases
Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign
By Joe Rumney
19 January 2023
Press releases
PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community
By Rebecca Pender
18 January 2023
Press releases
“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases
By Rebecca Pender
6 January 2023
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