RARE News

RARE News

Know your sickle cell trait status, according to new campaign

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20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

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19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

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19 January 2023

RARE News

Cell & Gene Therapy Summit 2023

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18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

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18 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

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6 January 2023

RARE News

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

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3 January 2023

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

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8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

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7 December 2022

RARE News

DEBRA launches £5m fundraising appeal to stop the pain of EB

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16 November 2022

RARE News

Winners of Gene People Awards 2022 announced

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16 November 2022

RARE News

Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults

By admin

26 October 2022

RARE News

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

By admin

20 October 2022

RARE News

The Student Voice Prize: an international essay competition raising the profile of rare disease

By admin

13 October 2022

RARE News

World Orphan Drug Congress 2022 – Europe’s most exciting orphan drug event

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10 October 2022

RARE News

World Duchenne Organization announces Accredited Duchenne Centers Programme

By admin

7 October 2022

RARE News

Sickle Cell Disease Association holds 50th annual national convention virtually

By admin

5 October 2022

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