RARE News

Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK

By admin

10 September 2020

RARE News

Leading NIH expert on GNE myopathy joins the Neuromuscular Disease Foundation (NDF)

By admin

1 September 2020

RARE News

Jeff D’Angelo: founder of CHAMP 1 research foundation tells his RARE story

By admin

11 August 2020

Rare insights

Team reflections on working through a global pandemic

By admin

20 July 2020

RARE News

RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the ​youth rare disease community

By admin

24 June 2020

RARE News

Launching RARE Youth Revolution platform

By admin

18 June 2020

RARE News

A global gateway to a lasting legacy

By admin

17 June 2020

RARE News

Genomenon released genomic landscape for ectodermal dysplasias for Rare Disease Week

By admin

5 March 2020

Weblinks and references

Signposting weblinks for: Mental Health special issue 012(S)

By admin

10 April 2019

Weblinks and references

References and signposting weblinks for: RARE Patient Partners edition 014

By admin

10 January 2019