Close
×
Subscribe Now
By entering these details you are signing up to receive our newsletter.
First Name
Last Name
Your Email
Type of visitor?
Individuals with a rare condition
Caregiver/family member
Industry/biotech/pharma
Healthcare professionals
Charity/advocate
General interest
Newsletters
RAREBite Newsletter Subscribers (Twice Weekly)
Magazine and RARE Round-Up Weekly Newsletter
Latest Edition
RARE Neurology
Subscribe Now
Home
Meet the team
Magazine
RARE INSIGHTS
A day in the life
Charity & advocacy
Charity partner news
Editor’s picks
Events
Industry insights
Medical
Patient voice
Press releases
RARE employment
RARE parenting
RARE ramblings
RARE REV-inar
Science & tech
Sunday sessions
Turning the tide for rare disease
Weblinks and references
THE PEOPLE OF RARE
Digital Spotlight
Resources
RARE Reports
Charity Partners
Charity Signup
WORK WITH US
Rare Revolutionaries
Corporate Friends
Community Gallery
Rare Youth
Privacy Policy
Latest Edition
RARE Neurology
Subscribe Now
To use more accessibility options, please use a different browser such as Chrome or Firefox.
Press releases
Press releases
DNA sequencing in newborns reveals years of actionable findings for infants and families
By admin
5 June 2023
Press releases
Global Genes’ RARE-X issues open call to researchers to participate in the Inaugural Xcelerate RARE Challenge
By admin
31 May 2023
Press releases
American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease
By admin
25 May 2023
Press releases
The Muscle Help Foundation launches 20th anniversary celebrations
By admin
16 May 2023
Press releases
Global Genes announces partnership with CureJM Foundation to expand support in rare disease community for mental health-related challenges
By admin
16 May 2023
Press releases
The Twin Run – supporting high-risk multiple birth parents and twin research
By admin
12 May 2023
Press releases
CureDuchenne partners with PicnicHealth to advance research and simplify patient experience by incorporating electronic health records into data-integrated biobank
By admin
5 May 2023
Press releases
Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market
By admin
2 May 2023
Press releases
PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast
By Rebecca Pender
30 April 2023
Press releases
Survey shows 60% of people living with progressive supranuclear palsy and corticobasal degeneration are initially misdiagnosed
By admin
28 April 2023
Press releases
What is Quality of Life (QoL) for people living with a rare disease?
By admin
24 April 2023
Press releases
National health charity, CMTUK, is to host Charcot-Marie-Tooth conference on 21–22 April 2023
By admin
21 April 2023
Press releases
May Movement Challenge – Free adaptive and accessible online exercise
By admin
17 April 2023
Press releases
8th annual RARE Drug Development Symposium – May 1-3, 2023
By admin
7 April 2023
Press releases
Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women
By admin
28 March 2023
Press releases
Sickle Cell Disease Association of America to promote clinical trials
By admin
16 March 2023
Press releases
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
By admin
28 February 2023
1
2
3
…
5
Next »
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset