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RARE News

cTAP Study indicates Duchenne muscular dystrophy clinical trial enrollment criteria should expand beyond ambulatory status

By admin
29 July 2024

RARE News

Landmarks shine pink and purple for National Eosinophilic Week

By admin
29 July 2024

RARE News

The CMT Research Foundation’s 2024 Global CMT Research Convention to gather renowned scientific experts and patients to discuss status of treatments and cures for Charcot-Marie-Tooth (CMT) disease

By admin
19 July 2024

RARE News

NHL All-Star Ryan Getzlaf returns to the links for the 13th Annual Getzlaf Golf Shootout on September 13-14, benefiting CureDuchenne

By admin
17 July 2024

RARE News

Challenges and priorities for the PSP and CBD community: Insights from Mark Jackson

By admin
12 July 2024

RARE News

The CMT Research Foundation to launch grant program to support young investigators working on CMT

By admin
12 July 2024

RARE News

Concerned stakeholders issue call to action on the implementation of the EU Joint Clinical Assessment for ATMPs

By admin
9 July 2024

RARE News

International Neonatal Screening Day: A call for global implementation of neonatal screening programmes

By admin
28 June 2024

RARE News

PSPA event brings together families affected by progressive supranuclear palsy and corticobasal degeneration

By admin
25 June 2024

RARE News

Little Moments Matter: a new film from Dravet Syndrome UK marks Dravet Syndrome Awareness Day

By admin
24 June 2024

RARE News

Cure GABA-A: A year of transformative impact in the GABAAR community

By admin
20 June 2024

RARE News

American Kidney Fund convenes Rare Kidney Disease Action Network to advocate change for patients with rare causes of kidney disease

By admin
18 June 2024

RARE News

Myhre Syndrome Foundation hosts inaugural in-person conference, offering hope and support to the community

By admin
7 June 2024

RARE News

Country music legend Alan Jackson’s ‘Last Call’ tour to have a dual legacy

By admin
6 June 2024

RARE News

Global Liver Institute applauds ​​US representative Nydia Velázquez’s reintroduction of the Liver Illness, Visibility, Education and Research Act (LIVER Act)

By admin
4 June 2024

RARE News

UK charity backs calls for improved support for carers

By admin
4 June 2024

RARE News

Families fight for rare epilepsy breakthrough and find it through a unique collaboration

By admin
28 May 2024
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