RARE News

Double dose of suffering: how the war in Ukraine has affected patients with rare diseases

By admin

14 August 2023

RARE News

Landmarks illuminate pink and purple for National Eosinophilic Week

By admin

4 August 2023

RARE News

Pulitzer Prize-winning journalist Amy Dockser Marcus and Rebel Health author Susannah Fox to deliver keynotes at 12th annual RARE Advocacy Summit

By admin

19 July 2023

RARE News

RARE Health Equity Forum seeks to put ideas into action

By admin

12 July 2023

RARE News

Rare disease patient advocates gather in San Diego for a week of events to connect, learn, and empower

By admin

7 July 2023

RARE News

New online course for medics launched today: exploring mental health and rare disease

By admin

4 July 2023

RARE News

Sickle Cell Disease Association of America teams with MedicAlert Foundation to improve emergency outcomes during sickle cell crises

By admin

28 June 2023

RARE News

102,000 newborns could be saved every year if proper screening were in place – celebrating International Neonatal Screening Day

By admin

28 June 2023

RARE News

Rare Care Centre Australia impact report

By admin

26 June 2023

RARE News

Pioneering polar adventurer and charity CEO of The Muscle Help Foundation charity to be awarded MBE for services to people with muscular dystrophy

By admin

26 June 2023

RARE News

An important milestone for the Duchenne community

By admin

23 June 2023

RARE News

Charity survey shows 60% of people with PSP and CBD are misdiagnosed

By admin

17 June 2023

RARE News

Cure Mito Foundation launches resource on Leigh syndrome

By admin

9 June 2023

RARE News

DNA sequencing in newborns reveals years of actionable findings for infants and families

By admin

5 June 2023

RARE News

Global Genes’ RARE-X issues open call to researchers to participate in the Inaugural Xcelerate RARE Challenge 

By admin

31 May 2023

RARE News

American Kidney Fund will host cystinosis camp as part of national virtual camp for children and teens with kidney disease

By admin

25 May 2023

RARE News

The Muscle Help Foundation launches 20th anniversary celebrations

By admin

16 May 2023