Turning the tide for rare disease

Gillian Jackson: bringing positive energy and information to the online BBS community

By CONTRIBUTOR

11 March 2022

Charity & advocacy

The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments

By CONTRIBUTOR

10 March 2022

Turning the tide for rare disease

How 10,000 people living with disability could end the foster care crisis

By CONTRIBUTOR

7 March 2022

Turning the tide for rare disease

Brace! Brace! Brace… for burnout!

By CONTRIBUTOR

2 March 2022

Turning the tide for rare disease

Turning the tide for rare disease

By CONTRIBUTOR

28 February 2022

Industry Insights

Living with Gaucher disease: challenging encounters along the patient journey

By CONTRIBUTOR

17 February 2022

Patient voice

Cavernomas—a patient’s efforts to understand the possible systemic implications of a defect in the KRIT1 (CCM1) gene

By CONTRIBUTOR

14 February 2022

Patient voice

The global disability community and the DE&I discussion: a match that needs to be made

By CONTRIBUTOR

9 February 2022

Patient voice

Everyone, on the bus!

By CONTRIBUTOR

28 January 2022

A day in the life

My year at RARE Youth Revolution

By CONTRIBUTOR

26 January 2022

Charity & advocacy

Living with muscular dystrophy in Nepal

By CONTRIBUTOR

13 December 2021

Patient voice

Caring for his children with VICI syndrome: Muzaffar Anjum’s story

By CONTRIBUTOR

8 December 2021

Patient voice

“Do you hear me?”

By CONTRIBUTOR

3 December 2021

Medical

Seeing Red

By CONTRIBUTOR

26 November 2021

Patient voice

My scars tell a story

By CONTRIBUTOR

24 November 2021

Charity & advocacy

A new UK charity launches to support those impacted by Glut1DS

By CONTRIBUTOR

12 November 2021

Patient voice

Hannah, Me and NCSE

By CONTRIBUTOR

10 November 2021