A day in the life

My year at RARE Youth Revolution

By CONTRIBUTOR

26 January 2022

Charity & advocacy

Living with muscular dystrophy in Nepal

By CONTRIBUTOR

13 December 2021

Patient voice

Caring for his children with VICI syndrome: Muzaffar Anjum’s story

By CONTRIBUTOR

8 December 2021

Patient voice

“Do you hear me?”

By CONTRIBUTOR

3 December 2021

Medical

Seeing Red

By CONTRIBUTOR

26 November 2021

Patient voice

My scars tell a story

By CONTRIBUTOR

24 November 2021

Charity & advocacy

A new UK charity launches to support those impacted by Glut1DS

By CONTRIBUTOR

12 November 2021

Patient voice

Hannah, Me and NCSE

By CONTRIBUTOR

10 November 2021

Patient voice

Cavernous malformation and the Breaking Barriers Initiative

By CONTRIBUTOR

5 November 2021

Patient voice

Please don’t call my son a patient

By CONTRIBUTOR

3 November 2021

Charity & advocacy

October is CMT awareness month in the UK

By CONTRIBUTOR

22 October 2021

Charity & advocacy

Applications open for Duchenne Patient Academy 2021

By CONTRIBUTOR

18 October 2021

Sunday sessions

Buddhism, yoga and meditation: how Dee Cowburn is following the path to mindfulness to guide her through life’s darker times

By CONTRIBUTOR

8 October 2021

Sunday sessions

Relationships can be tricky in a world of rare disease

By CONTRIBUTOR

8 October 2021

Sunday sessions

Sholto’s war

By CONTRIBUTOR

8 October 2021

RARE caregiving

Parenting superpower series – stay listening

By CONTRIBUTOR

7 October 2021

RARE caregiving

Every day is a gift: interview with Dr Al Freedman RARE dad and counselling psychologist

By CONTRIBUTOR

7 October 2021