Charity & advocacy

Haemochromatosis UK helps thousands with life-threatening genetic condition to be diagnosed through postal health kits

By CONTRIBUTOR

18 September 2024

A day in the life

Drunk or disabled? – challenges with ataxia

By CONTRIBUTOR

16 September 2024

Sunday sessions

How reiki, spirituality and faith help me accept life with a rare disease

By CONTRIBUTOR

15 September 2024

Letters

The math is anything but encouraging

By CONTRIBUTOR

12 September 2024

Charity & advocacy

Alex TLC Monthly Research Summaries

By CONTRIBUTOR

12 September 2024

Industry Insights

NICE’s key developments in 2024 in summary

By CONTRIBUTOR

11 September 2024

Charity & advocacy

Hope on the horizon: celebrating two years of Hereditary Brain Aneurysm Support and a bright future ahead

By CONTRIBUTOR

10 September 2024

Turning the tide for rare disease

Sickle cell disease: The urgent need for better care, increased research funding and better treatment options

By CONTRIBUTOR

8 September 2024

Patient voice

Find the power in you

By CONTRIBUTOR

4 September 2024

Charity & advocacy

SMA Europe unites international voices in the new documentary ‘One Community. Shared Dreams’

By CONTRIBUTOR

31 August 2024

Industry Insights

How ‘do’ we versus how ‘should’ we think about disease awareness activities?

By CONTRIBUTOR

30 August 2024

Patient voice

Rare cancers: Sarcoma and your mental health

By CONTRIBUTOR

28 August 2024

Turning the tide for rare disease

Rare Patient Voice: Helping patients and caregivers share their voices

By CONTRIBUTOR

28 August 2024

Patient voice

Finding Joy and Keeping Joy: Morven-May MacCallum’s 17-year battle with Lyme disease

By CONTRIBUTOR

21 August 2024

Patient voice

Looking for the positives during hard times: visual snow syndrome

By CONTRIBUTOR

21 August 2024

A day in the life

#JosiahStrong: Living with familial cold autoinflammatory syndrome—one year on

By CONTRIBUTOR

14 August 2024

Letters

A troubling development in access to treatment for people living with primary biliary cholangitis (PBC)

By CONTRIBUTOR

7 August 2024