RARE News

RARE News

What is HH? Carrie Fulcher tells her story of finally discovering that she had a hypothalamic hamartoma

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30 October 2021

RARE News

Rare Community Network and Medics4RareDisease platform the underrepresented voices of the rare disease community for NHS England & Improvement meeting

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26 October 2021

RARE News

Research Tools Matching Grant Program now accepting applications!

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25 October 2021

Charity & advocacy

October is CMT awareness month in the UK

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22 October 2021

Charity & advocacy

Applications open for Duchenne Patient Academy 2021

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18 October 2021

Weblinks and references

Digital health revolution and its transformative potential for rare diseases – WEBLINKS AND REFERENCES

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13 October 2021

Sunday sessions

Buddhism, yoga and meditation: how Dee Cowburn is following the path to mindfulness to guide her through life’s darker times

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8 October 2021

Sunday sessions

Relationships can be tricky in a world of rare disease

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8 October 2021

Sunday sessions

Sholto’s war

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8 October 2021

RARE parenting

Parenting superpower series – stay listening

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7 October 2021

RARE parenting

Every day is a gift: interview with Dr Al Freedman RARE dad and counselling psychologist

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7 October 2021

RARE parenting

Bernd’s brave new world

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7 October 2021

RARE parenting

Fatherhood and fighting for change in the world of rare disease

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7 October 2021

RARE parenting

TWIN RUN: Dutch dad raising awareness of twin complications

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7 October 2021

RARE parenting

A mum on a mission to make the world a more inclusive place for RARE children

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7 October 2021

RARE employment

Realising our workplace vision

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6 October 2021

RARE employment

RARE Employment Q&A with Police Inspector David Singleton

By admin

6 October 2021

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