RARE News

RARE News

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

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3 January 2023

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

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8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

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7 December 2022

RARE News

DEBRA launches £5m fundraising appeal to stop the pain of EB

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16 November 2022

RARE News

Winners of Gene People Awards 2022 announced

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16 November 2022

RARE News

Leading Muscular Dystrophy charity gives petrol heads a ‘driving experience of a lifetime’ as it continues its commitment to delivering life-changing wish-fulfilment experiences to children and young adults

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26 October 2022

RARE News

CureDuchenne launches Occupational therapist certification programme to improve care for individuals with Duchenne muscular dystrophy

By admin

20 October 2022

RARE News

The Student Voice Prize: an international essay competition raising the profile of rare disease

By admin

13 October 2022

RARE News

World Orphan Drug Congress 2022 – Europe’s most exciting orphan drug event

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10 October 2022

RARE News

World Duchenne Organization announces Accredited Duchenne Centers Programme

By admin

7 October 2022

RARE News

Sickle Cell Disease Association holds 50th annual national convention virtually

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5 October 2022

RARE News

American Kidney Fund’s Unknown Causes of Kidney Disease Coalition set to advance policies on rare kidney diseases

By admin

26 September 2022

RARE News

The Dash Alliance and RARE Revolution Magazine – levelling up for RARE

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21 September 2022

RARE News

The 2022 Jeans For Genes grant programme is now open and inviting applications

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1 September 2022

RARE News

Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month

By admin

31 August 2022

RARE News

Operationalise: Early Access Programmes Summit Europe 18-20th October 2022

By admin

24 August 2022

RARE News

RARE Rev-inar Episode 001 Early Access Programmes

By admin

24 August 2022

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