RARE News

RARE News

CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy

By admin

31 January 2024

RARE News

Sickle Cell Disease Association of America Inc. appoints two to board

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29 January 2024

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American Kidney Fund announces April 30 as the first annual APOL1-mediated kidney disease (AMKD) awareness day

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26 January 2024

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REGISTER NOW for M4RD’s ANNUAL SYMPOSIUM

By admin

23 January 2024

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New research puts the spotlight on tube feeding

By admin

23 January 2024

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CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement

By admin

23 January 2024

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Project CASK Grant Program now accepting applications

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18 January 2024

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International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness

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17 January 2024

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Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”

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10 January 2024

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UK charity PSPA raising awareness in news-style programme

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10 January 2024

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IGA celebrates 30th anniversary in 2024

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9 January 2024

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Sickle cell disease is not a joke

By admin

19 December 2023

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Sickle Cell Disease Association of America Inc. statement about gene therapy approval

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15 December 2023

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PSPA celebrates after receiving £164,000 National Lottery funding to help people living with PSP & CBD

By admin

13 December 2023

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Worthing couple take part in cooking challenge supported by celebrity chefs to raise funds for Muscular Dystrophy

By admin

8 December 2023

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CureDuchenne raises more than $1.3 million at ninth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By admin

16 November 2023

RARE News

Exciting news: $100,000 in funding for Myhre syndrome research projects

By admin

7 November 2023

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