RARE caregiving

RARE caregiving

Challenges of caring for a rare disease patient—a discussion

By Becky Pender

20 November 2024

RARE caregiving

A road less travelled is no less worthy: A RARE mum’s reflections on special needs parenting

By CONTRIBUTOR

21 June 2024

RARE caregiving

The barista and the quiltmaker: life lessons from strangers

By CONTRIBUTOR

5 July 2023

RARE caregiving

Parenting superpower series – stay listening

By CONTRIBUTOR

7 October 2021

RARE caregiving

Every day is a gift: interview with Dr Al Freedman RARE dad and counselling psychologist

By CONTRIBUTOR

7 October 2021

RARE caregiving

Bernd’s brave new world

By CONTRIBUTOR

7 October 2021

RARE caregiving

Fatherhood and fighting for change in the world of rare disease

By CONTRIBUTOR

7 October 2021

RARE caregiving

TWIN RUN: Dutch dad raising awareness of twin complications

By CONTRIBUTOR

7 October 2021

RARE caregiving

A mum on a mission to make the world a more inclusive place for RARE children

By CONTRIBUTOR

7 October 2021

RARE caregiving

Parenting superpower series – play listening

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – special time

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – loving limits

By CONTRIBUTOR

6 October 2021

RARE caregiving

Parenting superpower series – the gift of listening partnerships

By CONTRIBUTOR

30 August 2021