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RARE REV-inar episode 001

We are excited to welcome Tanner Pharma as co-hosts of our very first RARE Rev-inar. This live event will guide attendees through A multi-stakeholder look at early access pathways. Join us for lively discussion on early access and why it is important to include everyone’s voice.

Thursday 22nd September at 2pm BST

Register now:

RARE REV-inar episode 1 part 1 Early Access Pathways The Role of patient groups

A very warm welcome to our first in the series of RARE Rev-i-nars where today we will be talking all things EARLY ACCESS. I am Nicola Miller, Creative Director at RARE Revolution Magazine, and in the background working on the tech today, I am joined by my colleague Becky Pender. 

Today’s session which is in partnership with the TANNER PHARMA Group is a multi-stakeholder look at early access pathways. 

We are thrilled to have so many register for today and would encourage you to participate in the polls throughout the session, and please do drop any questions in the Q&A area and we will do our best to get to as many of them as we can at the end of the session. Any we don’t have time to get to we will endeavour to answer after the session closes and feed back to you all.

Today’s session will be also available to revisit on demand post event which we will circulate links to in due course.

I am delighted to be joined by very knowledgable and international line up today who can help guide us through the topic of early access.

John Lagus

Executive Vice President of Business Development @Tanner Pharma

David Caponera

Executive Director, Patient Advocacy @Novo Nordisk

Prof. ANIB Das

Head of Paediatric Metabolic Medicine @Department of Paediatrics, Hannover Medical School.

Dr. Femida Gwaadree-Shridhaar

Founder & CEO @Pulse Infoframe

Roberta Smith

President @Alagille Syndrome Alliance AND

Dawn Sullivan

Of Global Medical Affairs @Ultragenyx

Hello all and welcome

First, we are going to kick things off with a brief presentation from John on What is an early access programme or EAP and designing for the unmet needs.

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