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Press releases
Press releases
CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity
By admin
28 September 2023
Charity & advocacy
A Rare Find: upcoming comedy short wants to create conversation around newborn screening
By admin
27 September 2023
Press releases
Sickle Cell Disease Association of America holds national convention
By admin
27 September 2023
Events
World Orphan Drug Congress Europe 2023
By admin
27 September 2023
Press releases
Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK
By admin
26 September 2023
Industry Insights
Living well with a rare disease: are we really supporting our community to achieve this?
By admin
25 September 2023
Patient voice
Living with cold agglutinin disease: Jörg’s story
By admin
25 September 2023
Press releases
Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge
By admin
22 September 2023
Press releases
CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers
By admin
21 September 2023
Charity & advocacy
Mitochondrial disease awareness week: let’s move the needle towards effective treatments and cures
By admin
20 September 2023
Press releases
EveryLife Foundation study measures economic impact of delayed diagnosis of rare diseases
By admin
18 September 2023
A day in the life
A day in the life: a glimpse into my life living with scleroderma
By admin
15 September 2023
Press releases
Uncommon knowledge
By admin
13 September 2023
Patient voice
The physical, mental, and emotional toll of Charcot-Marie-Tooth disease: Joe Hogan’s story
By admin
13 September 2023
Press releases
W. David Arnold, MD joins CMT Research Foundation Advisory Board
By admin
7 September 2023
Medical
Transitioning successfully from paediatric to adult care in Duchenne muscular dystrophy
By admin
6 September 2023
Press releases
Sickle Cell Disease Association recognises Sickle Cell Awareness Month
By admin
5 September 2023
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