RARE News

RARE News

Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)

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24 February 2023

RARE News

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

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22 February 2023

RARE News

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

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17 February 2023

RARE News

Three small research grants awarded

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17 February 2023

RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

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16 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

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13 February 2023

RARE News

Shining the light on tube feeding

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5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

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24 January 2023

RARE News

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

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23 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

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20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

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20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

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19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

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19 January 2023

RARE News

Cell & Gene Therapy Summit 2023

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18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

By admin

18 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

By admin

6 January 2023

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